Data Use Agreement Chop

These Terms and any policies or operating rules posted by us on or in connection with the Service constitute the entire agreement and understanding between you and us. Our failure to exercise or enforce any right or provision of these Terms shall not be deemed a waiver of such right or provision. These Terms apply to the fullest extent permitted by law. We may assign all or part of our rights and obligations to third parties at any time. We are not responsible for any loss, damage, delay or inaction caused by causes beyond our control. If any provision or part of any provision of these Terms is held to be illegal, void or unenforceable, that provision or any part of the provision shall be deemed severable from these Terms and shall not affect the validity and enforceability of the remaining provisions. There is no joint venture, partnership, employment or agency relationship that arises between you and us as a result of these Terms or your use of the Service. You agree that these Terms shall not be construed against us after they have been drafted. You hereby waive any defense you may have based on the electronic form of these Terms and the lack of signature by the parties to enforce these Terms. All websites related to the www.chop.edu domain constitute an online information and communication service and website (the "Service") provided by Children`s Hospital of Philadelphia ("CHOP") and other sources.

Use of the Service is subject to the terms of this Agreement. Please read this Agreement carefully before accessing or using the Service. In this Agreement, Children`s Hospital of Philadelphia is referred to as "CHOP," "we," "us," or "our." By accessing or using the Service, you agree to be bound by all the terms of this Agreement. This Agreement is intended to be fully effective and binding on you and us. BY USING THE SERVICE, YOU AGREE TO THESE TERMS OF USE. Both the Office of Collaborative and Enterprise Research Contracts (OCCRC) and the Office of Pre-Award Research Administration strive to facilitate the research enterprise by ensuring that various funded and unfunded research agreements are reviewed, negotiated and approved while meeting all federal government requirements. the State, the promoter and the institutions. Below is a general overview of the agreements entered into by each group and the systems used to process them. Require the recipient to take appropriate safeguards to prevent unauthorized use or disclosure that is not provided for in the Agreement; If Stanford is the provider of a limited dataset, Stanford requires a DUA to be signed to ensure that the appropriate provisions to protect the limited dataset are in place. Here are the contacts for different types of research: Researchers can enter into their own data use agreement if they share a limited dataset within CHOP.

Require recipients to ensure that all agents (including all subcontractors) to whom information is shared agree to the same restrictions set out in the Agreement; and limited records may contain only the following identifiers: By using the Service, you agree and agree to be bound by and comply with these Terms. Certain features of the Service may be subject to additional policies, conditions or rules that may be set forth in a separate agreement or posted on the Site in connection with such features. All such additional terms, policies and rules are incorporated by reference into these Terms. If you do not agree to these Terms, you may not access or use the Service. Researchers can obtain data and samples in a variety of ways. For example, data/samples are likely to come from one of the following: Delete/delete all IHP elements from the data that would be required to create a de-identified record, with the exception of the following: De-identified records are such, (1) no IHP elements, and (2) no means for the investigator/recipient to link the data to IHP. The PSR elements of the person, the person`s relatives, employers, or members of the person`s household that must be excluded for the record to be considered de-identified include: For more information about sharing data with other investigators with several specific examples, download the NIH Data Sharing Manual. This paper also reviews the elements that should be included in the protocol if data sharing with other researchers is part of the research plan. This means that for a record to be considered a limited record, all of the following direct identifiers related to the person or their relatives, employers, or household members must be deleted: If a Stanford researcher is the recipient of a limited record from a source other than Stanford, the Stanford researcher may be asked to sign the other party`s DUA. In such a case, the Stanford researcher should contact the appropriate contracts office to determine if it is substantially compliant with the Stanford DUA.

A DUA must be completed before a limited file is used or disclosed to an institution or external party. However, employing an honest broker is a decision that must be made with great care. it may prevent an examiner from being able to re-identify data/samples from individual subjects. There have been many studies in which the use of an honest broker has prevented the investigator from returning to the subject or to his records to obtain additional data or to recruit subjects to participate in a new study. • License, sublicense, sell, resell, rent, rent, transfer, assign, distribute, timeshare or otherwise the commercial use or provision of the Service to third parties, except as expressly permitted in these Terms of Use. • Use the Service to process data on behalf of third parties without their consent. • Systematically retrieve data or other content from the Service to create or compile, directly or indirectly, a collection, compilation, database or directory without our written permission. • Unauthorized use of the Service, including the collection of users` usernames and/or email addresses by electronic or other means for the purpose of sending unsolicited emails or creating user accounts by automated means or under false pretenses. • Circumvent, circumvent, disable or otherwise interfere with the security-related features of the Service, including features that prevent or restrict the use or copying of the Content or impose restrictions on the use of the Service and/or the Content. • Use another user`s account to process orders and/or obtain sensitive account information from other users.

• Copy or customize the software of the service or the automated use of the system, e.B. the use of scripts to send comments or messages or the use of data mining and extraction tools. • disrupt, interrupt or cause an unreasonable load on the Service or the networks or services connected to the Service. • use the Service or any information they receive from the Service to harass, abuse or harm another person. .